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If you have a success story regarding your treatment, facility, drug therapy or remission, please share it here.
Regards,
Jim Johnston,
CD Executive Director |
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| This Blog is intended to start a dialogue on the various clinical trials that patients are interested in or need additional information on. Please limit this Blog to specifics on associated trials. Thank you.
Regards,
Jim Johnston,
Executive Director,
International Castlemans Disease,
Santa Fe, NM, USA
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| Please reserve this section for physician inquiries, comments, and communication between physicians. Although this is open for general public viewing, postings will be sanitized and limited to accredited physicians only.
Physicians, please remember that this site respects the rights of the patient. Under HIPPA guidelines, please refrain from using information which could identify a particular patient.
Without your support and interaction, this website would not be successful. On behalf of the website and the Castlemans Disease patients, families, and friends, thank you.
Thank you and enjoy.
Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA
HTTP://www.castlemans.org
Email: hmconsult@msn.gov
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| Please use this Blog for inquiries or comments on Treatment Plans for Castlemans Disease (e.g., Radiation, Surgery, and Drug Intervention).
Thank you and enjoy.
Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA
HTTP://www.castlemans.org
Email: hmconsult@msn.gov
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| Please use this Blog if you are a first time user with inquiries or wish to request information on Castlemans Disease (CD), treatment facilities, physician referrals or general CD inquiries.
Thank you and enjoy.
Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA
HTTP://castlemans.org
Email: HMConsult@msn.com |
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| Please use this Blog for general Castlemans Disease and associated disease inquiries. Responses will be answered by the commentator, forwarded to physicians, or comments provided by other patients.
Please be advised that the comments provided by other non-clinical patients, or representatives from organizations that are not recognized by the International Castlemans Disease website do not represent the comments, concerns, or advice of website colleagues.
Thank you and enjoy.
Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA
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| Dear Guests, The redesign and format of the Castlemans Disease website will be an ongoing effort to create a format for world-class access of information and dialogue on this rare disorder. My commitment to you, the patients, families, friends, and colleagues of this disease is to provide up-to-date and verified medical interpretation, recommendations, and referrals to treatment facilities and associated information on this rare disorder. In order to leave a message, from the main page choose a section of the dialogue that is appropriate to your question or comment. Click the "more" button which will direct you to the "LEAVE A COMMENT" screen. There is a red security code that must be entered in order validate the user and ultimately post a message. Once all your required fields have been completed, you may spell check the message before sending. Once sent, it is delivered to my CD email box for review and sanitation. This prevents spam, and other selling patrons that try to abuse the site. Submit the comment and once a day I will review the in box and post messages to the appropriate blog. In the event an immediate response is required, you may send an email directly to my email address for a faster answer. Enjoy the site and stay tuned for additional updates. Thank you. Jim Johnston, Executive Director International Castlemans Disease Organization Santa Fe, NM USA |
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